National Strategy for Palliative Care in Pandemic Times (PallPan)
Scientific management: Prof. Dr. Steffen Simon (Ltg.), Prof. Dr. Norma Jung (Infektiologie), Dr. Dr. Julia Strupp, Prof. Dr. Raymond Voltz
Contact: Berenike Pauli, Charlotte Leisse (Infektiologie), Dr. Anne Pralong, Karlotta Schlösser
Duration: 08/2020 – 12/2021
Funding institution: Bundesministerium für Bildung und Forschung
The 2020 SARS-CoV2 pandemic poses major challenges for which healthcare systems are generally not adequately prepared. The primary goal in a pandemic is to protect the population from possible infection and to provide medical care for those acutely ill with the infection. At the same time, however, care and medical attention must continue to be provided to non-infected patients and the general population. Despite all medical efforts, people will die as a result of the infectious disease. Likewise, even in the pandemic situation, people will continue to die from cancers or other advanced chronic diseases without suffering from the infectious disease. For example, protective and isolation measures such as visitation bans will cause people to die alone, placing an additional burden on family members and caregivers.
In order to be better prepared in the future, national recommendations and concepts are needed that focus on both general and specialized outpatient as well as inpatient palliative care, i.e. all areas of care where seriously ill and dying people are treated and accompanied. The study therefore addresses the development and consensus of a national strategy for the care of seriously ill, dying as well as deceased adults and their relatives in pandemic times with (a) recommendations for action on general and specialized palliative care for patients with/without infections on micro-, meso- and macro-levels, (b) collection and development of information material for the online information platform planned by the National Research Network University Medicine, and (c) identification of variables for the scientific recording of palliative care in pandemic times for the research database planned by the National Research Network University Medicine.