External evaluation of the palliative day care clinic at the Aschaffenburg-Alzenau Clinic

German Version

Project Management: Prof. Dr. med. Raymond Voltz, Dr. Dr. Julia Strupp (Department of Palliative Medicine, University Hospital Cologne)
Contactperson: Anne Müller, M.A.
Duration: 06/2020 – 08/2021
Contact: anne.mueller@uk-koeln.de

Project Description

Palliative day care clinics (PTKs) are not yet part of the standard care in Germany. The aim of a PTK is to achieve improved symptom control in patients under care so that the quality of life of those affected can be improved. An inpatient stay in hospitals should be delayed or prevented if possible and the Specialized Outpatient Palliative Care (SAPV) / General Outpatient Palliative Care (AAPV) should be supported. The spatial design as well as the personnel and equipment are geared to the special needs and wishes of dying people. In addition to the accommodation, palliative nursing, medical, therapeutic and psychosocial services are provided. Comprehensive care and nursing is guaranteed with the help of full-time and voluntary staff.

The PTK at the Aschaffenburg-Alzenau Clinic is a model project and will be evaluated in the planned research project. The data collected will be used to determine the extent to which there is a gap between palliative care units and outpatient care as provided by SAPV, and how this gap can be closed by help of a PTK. For this purpose, satisfaction, challenges, course of care and wishes of those involved, as well as the success of the respective treatment and alternatives are surveyed.

Method

Individual telephone interviews (n=60) and a postal questionnaire survey (n=50) are conducted. For the individual telephone interviews, 30 patients and 30 relatives are interviewed in order to obtain impressions, satisfaction, special features and wishes during the stay at the PTK. In addition to the telephone interviews, a questionnaire survey for quantitative data collection will be carried out to get information about the expectations, fears and opportunities of referring disciplines.

Dr. paed. Dr. rer. medic. Julia Strupp

Dr. paed. Dr. rer. medic. Julia Strupp

Research Coordinator

“Last Year of Life Study Cologne”, „MS-Hotline“, „ APVEL - Evaluation of specialized outpatient palliative care“, „iLive – Living well, dying well“

Publications (PubMed)

Phone
+49 221 478-87125
 Anne Müller

Anne Müller, M.A. Rehabilitation Sciences

Research Assistant

External evaluation of the palliative day care clinic at the Aschaffenburg-Alzenau Clinic (PATINA), Early palliative care for patients with glioblastoma (EPCOG)

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